Just got this update for Rylen, he is doing great so far!
Alicia (Rylen's Mom) " He is doing better than the drs expected him to do. He is still not eating 60cc's like the dr wants but we have him up to 40. His temperature is regulated which was something else the dr didn't think he could do, not to mention he lets us know when he is hungry, dirty, and cold. I have no doubt he is a miracle baby. We might be coming home in a few weeks to try the shunt. Not sure though how that will go."
Keep those wonderful prayers coming! Thanks!